Wednesday, July 16, 2014

Take a Break: Become a Citizen Scientist for a Day



Every day, people all over the globe are helping scientists make discoveries, figure out new ways to do things, protect natural resources and much more. Even if you are home bound, never went to college or didn’t finished high school, there is a project for you, even it it’s just for a day.

If you want to work on a project close to home, do a search with the name of your town or state with “citizen scientist.” Refine your search by area of interest (e.g. history, birds, astronomy).

Links to help you find a project that could use your help:

Zooniverse: Citizen science projects for space, climate, humanities, nature and biology. This is a good place to start to learn where your talents will be most useful. 


Project Noah: A tool to explore and document wildlife and a platform to harness the power of citizen scientists everywhere.


SETI@Home: This project is using help in searching for extraterrestrial intelligence. 


Saturday, July 12, 2014

How to Stop Resenting the “healthy” and Get off the Pity Pot

Do you ever find yourself resentful of someone who doesn’t have to deal with a chronic condition? What about just plain feeling sorry for yourself? Does it really help to think how everyone has it so much better than you?

If you didn’t ever feel resentful or feel sorry for yourself, you wouldn’t be human. As a temporary device, it might help soothe the pain, but it’s not a long-term solution. When we start feeling sorry for ourselves, we can loose sight of the fact that we’re wallowing in misery. It not only drains one of valuable energy and time, it wears on your immune system and it also irritates the people around you.

Things to Help Get You Off the Pity Pot
• Recognize that you are feeling sorry for yourself.

• Join a support group, where others have experiences similar to yours. You can do this on-line or in person.

• Volunteer. Helping someone else will help you. Even if you are home bound, there are ways you can be helpful to others. Need ideas? Contact your condition specific organization, church, community organization, family and friends and offer to help. Doing phones calls, stuffing envelopes, making a meal. The list is endless

• Drop “if only” from your vocabulary and don’t make a practice of hanging out with people who start sentences with it. “If only” leads to a litany of things that someone is feeling sorry for themselves about. Instead develop a language of strength. Think about your positive strengths and qualities. Each day, pick a strength and use it in a new way.  

• There are plus sides to everything. Check out The Positives of Having a Chronic Illness 

• Practice gratitude. There are lots of ways to do this including:
- Every evening, write down three good things that happened that day and think about why they happened.
- Write a letter to someone explaining why you feel grateful for something they’ve done or said. Read the letter to the recipient, either in person or over the phone.

- Make a mental spotlight each night and scan over the events of the day, thinking about what went right.


• Stuff happens to everyone. It may be different than what your dealing with, but everybody gets their own “sack of rocks.” Comparing yourself to others is fruitless if for no other reason then you don’t know what people are dealing with. As the proverb says  “Only the wearer knows where the shoe pinches.”

• Remember we’re wired to be resilient so consequently, negative life events wont have as lasting an impact as you might think.

There is also the question, ”How do I get them to stop feeling sorry for themselves?” Simply put you can’t change anyone’s behavior. Read more on this topic, “They Don’t Take Care of Themselves.” 

Though no one can go back and make a brand new start, anyone can start from now and make a brand new ending. Carl Sandburg








Wednesday, July 9, 2014

Take a Break: Celebrate the Watermelon

Who knew that watermelon was both a vegetable and a fruit. It has all sorts of benefits, such as vitamin C and A, potassium and dietary fiber, and it tastes wonderful. Since it’s the height of summer, so what better day to celebrate the watermelon.

First, and maybe most important, learn how to Pick the perfect watermelon. Once you’ve brought your watermelon home, leave it at room temperature, as that helps it retain all its vitamins. Chill it just before serving. Wash and dry the melon before cutting, which reduces any contaminants getting into the “meat.”

Recipes using watermelon
•  Onion, Feta Watermelon Salad: This is my favorite summer salad, even though I use half the olive oil and red wine vinegar recommended in this recipe. Tastes great with or without the mint. 

• Granita: A favorite of mine for parties or hot days.

 • Watermelon Cake 



Inspired by the watermelon
• Cookies: The directions use all store bought items. My recommendation is use your own recipes for a sugar cookie or shortbread, dying the batter green and using homemade frosting with a bit of red food coloring. 


• Earrings from Polymer Clay: This video is not in English, but the directions are very clear and easy to follow. 



Saturday, July 5, 2014

Implications of the Hobby Lobby Decision for Those Affected by Chronic Conditions

This past week, social media, as well as just about every “talking head” has weighed in on the Supreme Court’s decision regarding Hobby Lobby. Today’s post discusses implications for those affected by a chronic condition as a result of the ruling, but first a recap of events:

• June 30, 2014: In Burwell v. Hobby Lobby, the Christian owners of the craft store chain challenged the Affordable Care Act’s (ACA) requirement that companies provide contraception coverage to their employees. In Monday’s U.S. Supreme Court decision, the ruling says privately held companies have the right to deny contraception for women if they object on religious grounds. The majority opinion, which none of the court’s female justices joined, claimed that the 1993 Religious Freedom Restoration Act protects the rights of such businesses’ owners to withhold coverage for birth control if they claim it violates their religious beliefs.

• July 1, 2014: The Supreme court ordered all lower courts to rehear any cases where companies had sought to deny coverage for contraception, not just the specific types Hobby Lobby was opposed to.

• July 1, 2014: A group of religious organizations sent a letter to the President saying they wanted exemption from the LGBT (lesbian, gay, bisexual, transgender) hiring order.

If your waiting to see what will be filed in light of Monday’s decision, there is no wait as The Becket Fund, the religious law firm that represented Hobby Lobby in its legal case, lists 49 pending federal cases in which for-profit companies have brought religious objections against the Affordable Care Act (ACA) and an additional 51 cases that involve non profits.

More than 50% of US companies meet the criteria of “privately held,” and some of these are very large companies, so this has the potential to impact many women.

Precedent, which is what our legal system revolves around, looms large here. Has the precedent has been set for challenging other practices, that make good sense medically but certain religious groups find objectionable? Justice Ruth Bader Ginsburg thought so in her dissenting arguments. Is she going over board, as some claim?

On July 2, the New England Journal of Medicine contained a Perspective written by two lawyers and a physician. In the wake of Hobby Lobby, we may anticipate challenges to other medical services that some religions find objectionable, such as vaccinations, infertility treatments, blood transfusions, certain psychiatric treatments, and even hospice care. Hobby Lobby's implications may also extend into civil rights law, with employers asking to “opt out” of laws intended to protect people from employment and housing discrimination based on religion, race, sex, national origin, or pregnancy status. Although the majority deemed these slippery-slope concerns unrealistic, the dissent expressed serious concerns.

Though the decision applies only to closely held, for-profit corporations, it sets a precedent for religious exemptions that could have sweeping implications — and reflects the Supreme Court's great potential impact on U.S. health care. Yet the Court was applying Congress's statute, and Congress could, if it chose, scale back the protection offered to religious objectors — a good reason to share public reactions to the decision with our elected representatives. 

So what does this all mean for people with chronic conditions? First and foremost, be concerned.

The precedent has now been set that a private business can decide what they will or will not pay for when it comes to their employees health care based on their particular religious beliefs and not what has been found medically appropriate. It’s worth noting here that the employee benefit package is part of their pay and not just the company being nice. So if the employee is actually paying for their healthcare, shouldn’t they have the say and not the employer?

In addition to denying health services, the ruling is already being used to justify discrimination against a group of people, namely the LGBT community, as far as employment.

I’d like to believe that the silver lining to this situation is that the country will finally wake up to the fact that employers should not be brokering employee’s health care. A single payer universal health care system is needed, which. could be phased in by lowering the age for Medicare and extending the age of childcare services, until they eventually meet and everyone is covered:

In the mean time,consider the following:

• Contraception has been shown over and over again to be fundamental to women’s health and well being. For women with chronic disease, it can be a lifesaver, so support organizations that work to help women obtain free and affordable contraception.

• Stay connected with your condition specific organization and support their efforts.

• If you have insurance through your employer, do the homework to see if considerations are being made to make changes as a result of Monday’s decision

• As the authors of the New England Journal of Medicine article pointed out “share public reactions”-let your public officials know how you feel about this issue.


• Vote!

Wednesday, July 2, 2014

Take a Break: D.I.Y. it for the 4th

With the 4th of July just two days away, here are some fun last minute activities to put you in a patriotic mood.



DIY Hand print Flag T-shirt  This uses a onesie for a child, but can be easily adopted for an adult shirt.

4th of July Candle Luminaries: This is very cool and uses Epsom salts for the red, white and blue. If you don’t have Epsom salts, you can easily dye table salt, sugar or even fine sand by putting them in a plastic bag, adding a few drops of food color, tightly closing the bag and “massaging” the bag until the dye is well distributed. The best food dyes, as far as color, come in the small jars. However, the drops also work but just aren’t as vibrant. 

• 4th of July Pinwheel  I’m a sucker for pinwheels. Use this as a pattern to make lots of pinwheels.

Previous 4th of July Take a Breaks