Wednesday, October 10, 2012

Take a Break: Learn about the Hungry Ghost Festival/Learnist


According to traditional Chinese belief, the seventh month in the lunar calendar is when restless spirits roam the earth. Many Chinese people make efforts to appease these transient ghosts, while ‘feeding’ their own ancestors – particularly on the 15th day, which is the Yu Lan or Hungry Ghost Festival. While the festival’s origins are not unlike those of Halloween in Europe, it is also intrinsically linked to the Chinese practice of ancestor worship.
 This festival takes place in August, but as one person noted, it’s Halloween on steroids.




Lean how other parts of the world celebrate Halloween using Learnist. Not familiar with Learnist? This is a new social media site that is like Pinterest but the goal is for those with an area of expertise to share it with others. People post blogs, videos and much more. While Pinterest has lots of pictures of what people would like to do, have or make, Learnist tells you what you want to know. This is still a fairly new site, and they’ve recently released an app version, so check in frequently to find things you might not see on your first visit.

Be sure to check this coming Saturday’s post, as it’s a follow up to the most read one on this the blog Unique Gifts for Hospital Patients.  It will provide a lot of suggestions and ideas for Unique Halloween Gifts for Hospital Patients. 

Saturday, October 6, 2012

Are Your Green Cleaning Products Making You Sicker? What about your skin lotions?


I’ve been in a lot of homes where people are dealing with chronic conditions. Some appear to be so clean you could eat off the floor, while others, well “not so much.” It  goes without saying that eliminating clutter can be healing, and definitely something to be encouraged. However, it’s the cleaning products that some people obsessively use that’s the purpose of today’s post.

 If you have a diseases like asthma or COPD air fresheners and cleaning products with scents can cause your condition to flare. In fact, about half of the products tested recently by the Environmental Working Group (EWG)  proved to harmful to human lungs. Learn more about cleaning supplies and your health, including topics such as asthma, cancer, reproductive and developmental toxicity, allergies and irritation and burns and poisonings. 

Recently the EWG released their 2012 Guide to Healthy Cleaning. They studied over 2,000 products and the results weren’t anything to make you smile at the fresh scent in your home.

EWG judges their products on the following criteria:
• Hazardous ingredients that pose threats to human health
• Little or no specific ingredient information on the label
• Contains ingredients restricted in some states and the European Union
• Products that release volatile chemicals.

Sadly, a number of those advertised “green” products did not stack up so well. So start by checking how your cleaning products are rated on the EWG Guide to Healthy Cleaning.

Not surprising, the cheapest and highest rated general cleaner was white vinegar. I gave up using “green cleaners” years ago as I found white vinegar, baking soda and liquid soap, along with good cleaning clothes, not only did a great job, but saved money in the process and didn’t contribute to indoor air pollution. 

For non toxic home cleaning ideas, check out Eartheasy: Solutions for Sustainable Living.

So now that you have your household cleaning under control, have you thought about what you are putting on your skin? EWG’s Skin Deep Cosmetics Database includes more than 75,000 products.  Body lotion, as well as make-up can impact your health. A woman I worked with was using a moisturizer that included vitamin A. Her liver enzyme test (ALT) was coming back with elevated levels. A particular concern for those with hepatitis C (HCV), she discontinued the product and her ALTs returned to normal. Her liver specialist made sure he knew the name of the lotion to put on the list of products people with HCV should avoid. 

Wednesday, October 3, 2012

Take a Break: Make Skeletons/Costumes/Jiggly Worms


 It’s once again time to think about Halloween, so, as in years past (see below for links to previous years), the October posts will be dealing with Halloween.

 What’s Halloween without a skeleton? Here is a new approach to making one is out of Q Tips. 

There are several weeks before a costume party or trick or treating. So why worry about it now? No need to as below are a variety of last minute costumes that let you dress pretty close to your normal style, or at least comfortable, but with a twist..

• Nudist on Strike: Wear your regular clothes with a sign that says, “Nudist on Strike.”

• The Second wife/The Other Woman: A blond wig and some flashy bling, along with a name badge that says, “Hello, I’m the 2nd wife,” or “I’m the “other” woman.”

• Tourist: A big hat, Bermuda shorts, flowered shirt, camera and a map. It does require you to look lost most of the night.

• Community Chest/State Seal: Make a copy of your state’s seal and pin to your chest. Take your pick, when asked what you are supposed to be-bark like a seal and say , “I’m the state seal” or if you have no seal barking skills,  “the state’s community chest.”

• Matchstick: Wear all white with a red stocking cap.

• Miss Matched: Wear a variety of clothes and accessories where nothing matches. Make a sash out of wide ribbon, something like what Miss America wears,  and write “Miss Matched” on it.

• Don’t Drink and Dress: Wear similar miss matched attire as noted for Miss Matched-such as different type of plaids which clash terribly (preferably made out of polyester), with a note pinned on your chest or back that says something along the lines of “Warning, drinking and dressing can be dangerous,” or “Don’t Drink and Dress.”

• Vampire: Since vampires like to blend in, just slip a pair of vampire teeth in your mouth and when someone talks to you, just smile. Midway through the party, add a few drops of red near your mouth so it looks as if you’ve had a sip or two in the previous hour.

• Vampire Victim: Perfect partner for the vampire. All it requires is a lot of very white makeup so you look quite pale, with two tiny fang marks on your neck. Apply with black eyebrow pencil, or magic marker in a pinch. Make sure they are on the juggler vein.

• Swiss Army Knife. Wear all red and draw the logo and pin it to your chest. Make it believable by having scissors, knife and other items at the ready.

• Party Pooper: Dress as usual with a “Hello I’m the Party Pooper” label for your chest.

• White Lies." Wear all white. Take a packet of post-its and write little white lies- "no, that dress looks good on you!" and "that's okay, I didn't need to sit down!" “I understand.” Stick them all over yourself. As the night wears on, you can let people take their favorite white lie home.

Finally, there are Jiggly worms or Halloween Worms. There are lots of recipes on line for these, but the one that sounds like it will work is from Food.com  http://www.food.com/recipe/halloween-worms-3092 as they let the jello set up a bit before they pour into the straws. Be sure to read the review section (46 and four stars) as they include some very helpful tips.

Previous Halloween Posts\
Dias de la Muertos (Day of the Dead)







Tricks and Treats 

Saturday, September 29, 2012

Strategies and Resources for Teens with Chronic Conditions


 

I was prompted to write this post after reading an article about a Mom’s response to her teenage daughter’s diagnosis with sudden onset multiple sclerosis (MS). As I’ve been working on this, I’ve had to wonder why it’s taken me so long to address this topic, as I spent quite a few years working with kids with HIV/AIDS, as well as having a son diagnosed with a chronic condition when he was a teen. Hmmm. One can speculate.

View this as a work in progress. While both the “Getting What You Need Checklist”  and Healing the Whole Person: Ways to Increase Well-Being are relevant for teens, by and large these are not handouts that would not appeal to them. In time, with a group of teens to lead the way, we will have versions of both of these documents for adolescents living with chronic conditions. Until then, this post will be more useful to parents, providers, teachers and adults who are working with adolescents.

Estimates are that about 2 million Americans  (6%) between the ages of 10-18, have a chronic condition that limits their activities of daily living. The most common are asthma, other chronic respiratory tract disease, musculoskeletal disorders and heart disease. Mental health issues can also appear during these years as the brain and body rapidly develop. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1071594/

Ask any parent of an adolescent and they can tell you “it’s the best of times, it’s the worst of times.” The hormonal roller coaster alone can take the entire family on what feels like an out of control ride. Throw a chronic condition into the mix and it can be a very tough road.

Below are strategies and resources to help try and map a steadier course for all involved

• Find a provider who works with teens if at all possible. Doctors, physician assistants and nurse practitioners that specialize in Family Medicine are often adept at this. Whether they have been trained in working with adolescents or not, one of the most helpful approaches is going to be: clear explanations in language they can understand, easy as possible treatment regiments to follow, and using specialists only when needed.

• Meet the teen “where they are at.” They network completely different than many adults, so providers need to understand that texting their cell phone to remind them of office visits, taking meds etc. maybe more effective than phone calls to home. Teens need an “e-prescription.” Give them links to good on-line resources-information about their condition, stories from teens who are living with similar chronic conditions and support groups. The parents also need their own e prescription.

• Teens live life at a “tweeter length.” Short information is best. Even though their text messages and tweets are full of OMG, LOL, etc. (here’s a link to help with translation of text and chat room abbreviations) avoid using them. As my youngest e-mailed my husband, when he wrote IME (in my experience) “don’t do that again.” It’s their jargon and they prefer to keep it among themselves.

• The brains of adolescents are different. While adults look at them as being impulsive and self-absorbed, this is normal behavior for a growing and developing brain. Watch Sarah-Jayne Blakemore’s TED talk, “The Mysterious Workings of the Adolescent Brain.” 

• Let Go. While all parents have their respective issues about “letting go,” there are unique challenges for the parent of a kid with serious health issues. Regardless, adolescents need to be encouraged to be independent, take care of their own health issues and develop their own set of coping skills. More than one adolescent has told me over the years, “I’m fine. I can do this, but she (and occasionally he or they) don’t trust me. “ The older they become, the more important it is to let them go to their medical appointments alone and form their own relationship with their care team. By the time they are 18, they  get to call the shots, so they need the skills sets to make the best possible choices.

Camps that are designed specifically for kids with special needs are a great place for starting the “letting go” process. See resources section for camp listings.

• School issues and self image are huge for this group regardless of health status. Looking different or having special needs compounds this problem and then some.   While there are lots of platitudes written about this “Encourage adolescents to share their concerns related to their body and how it may be affected by their illness or treatment” real concrete suggestions are needed.

When I was running Twin States, an organization for families dealing with various health conditions, we held a Family Camp and finally added a Kids Camp. The latter was the best thing we could do for our kids that were living with various health issues. As the kids aged, they became counselors in training and eventually counselors. It didn’t matter if the health conditions were the same they understood the isolation that comes from “being different.” Check the resource section below for a list of camps.

Helping adolescents connect to others who are experiencing similar issues is important. They can do this on-line or in person. If the medical  provider can’t offer information about groups, contact the local chapter of your condition specific organization (e.g. American Diabetes Association). If there is nothing out there that meets the need, start a Facebook page, chat room, blog or whatever format feels right for you.

• The human is very social, at all ages, but particularly at adolescents. Bottom line-don’t go it alone. See the resource section for on-line support groups for teens.

•  Compliance with medical regiments, sticking to diets etc. are an issue no matter what your age. Yes, teens that have to be on special diets because of diabetes, celiac’s or another condition can have a hard time when out with friends or in other situations. The idea that you have to adhere to this the rest of your life, can be overwhelming and challenging for teens (like it isn’t for adults).

Having a son who became symptomatic with Celiac’s disease as a freshmen in college gave me some first hand experience in how difficult it is for them and a family. My son took to calling himself a “glutard,” and referring to his food as “freak food.” Through trial and error he has become an excellent cook and even I’m finding I prefer the cookies and pies that I make from nut flours and oats over those made from wheat flour. In short, it takes trial and error and a belief that it will be ultimately okay.

• Sibs have needs too. Younger and older siblings can be as impacted by a brother and sister with a significant illness just like parents, grandparents etc. Check out Sibling Support Project http://www.siblingsupport.org/ and if your community doesn’t offer Sibshop, http://www.siblingsupport.org/sibshops/find-a-sibshop consider becoming a facilitator.

• Living in the present and mindfulness are important and there is currently a study Mindfulness Based Stress Reduction (MBSR) and teens. To learn more about this approach for helping teens with various types of health issues, go to Mindfulness Based Teen Program Pilot Phase. 

RESOURCES
Camps for Children/Adolescents
• The Hole in the Wall Gang Camp: Held at the Camp’s 344-acre facility in Ashford, Connecticut, Camp’s signature summer program consists of eight, weeklong sessions for seriously ill children aged 7-15, and one session for the siblings of children with serious illnesses. The camp is free with its primary catchment area being the Northeast. Other programs are offered through out the year. 

• Hero’s Journey: A seven-day course of personal challenges, Wilderness First Aid and backcountry living at Camp for young adults aged 16-18 whose lives have been impacted by a chronic or life-threatening illness. Five sessions run per summer. 





On-line Support Groups for Teens
• Internet Support Networks: Suggestions for a Safe and Sound Experience  Item 5 includes various on-line groups to consider.



Learning From Other Teens
• Finding Our Way: Stories from teens who are part of the Darmouth STAR (Steps Toward Adult Responsibility) program. 

Other Resources
• Dealing with a Chronic Condition: Site includes information for teens and parents. 

• Family Voices: Family centered care for all children and youth with special health care needs and/or disabilities 

Wednesday, September 26, 2012

Take a Break: Chocolate Leaves and Other Projects


Fall is so gorgeous in Vermont, particularly the vibrant shades of red and orange, so today’s “take a break” is all about going outside and collecting leaves from your neighborhood. There are so many ways that you can use these leaves, but since I adore chocolate in all forms, my first suggestion is making chocolate leaves.

 While traditionally lemon leaves are used for this, how many of us are fortunate to have lemon leaves in our yards? However, as long as the leaves are free of pesticides and non toxic, you can use them for this project. Rose and grape leaves are fine. So before you start this project, check with your state’s garden hotline to make sure the leaves you are using are safe. Greener leaves that have pronounced veins work best for this project.

To get started wash and dry the leaves carefully.

Melt chocolate. You can use a water bath or place the chocolate in the microwave for 30 second bursts so that it doesn’t burn. “Paint” the chocolate onto the back side of the leaf, you can use your finger,  and place on wax or parchment paper to dry. I generally put them in the refrigerator. Once hardened, peel holding onto the stem. Store the leaves in the refrigerator until ready to use.

You can use white chocolate and add a little bit of food coloring to obtain the reds, yellows and oranges of fall. While there are specific colorants you can purchase for white chocolate, regular food coloring, with a little bit of oil, works. The colors are not going to be a bit muted with this technique. 

One idea for a terrific dessert is to take a chocolate leaf, place a single berry (such as a strawberry, raspberry or blackberry) with a smidge of whipped cream. How elegant!

For more tips, watch the video How to make chocolate leaves. 

Some other leaf projects:

Paint on Leaves: The leaf is your canvas. Just about any leaf will do, but the bigger the better. Unfortunately, you wont be able to really paint them right away, but you can begin the process.

Step 1: Place leaves with their stems between paper, under books or bricks, and let dry and flatten.

Step 2: Once dry, soak them in water, so they will become soft and pliable.

Step 3: Paint with acrylics.

Step 4: Consider framing.


Cut patterns into dry leaves: Use the same process above for leaf preparation, and then gently cut out designs. For inspiration, check out Lorenzo Duran’s amazing leaf cuts 


Make Roses from Maple Leaves: I did this last fall and the results are amazing. 


Saturday, September 22, 2012

Change Happens: Gaining a Better Perspective on It



As a kid when something happened we didn’t like, particularly if it was something you really had no control over, it was common for adults to say, “It’s like the weather. Don’t like it?” Wait a bit and it will change.”

The knowledge that changes can and will continually happen, can be comforting. It can also be terrifying and cause considerable fear and anxiety. There are times we become frustrated with how slow a change is coming and other times, it seems like we are trying to ride life with the brakes on in an effort to keep things constant.

Whether the change is good (your blood work comes back with excellent results), bad (you have a flare in your chronic condition), outside your control (the doctor you like is leaving the center where you receive your care), it’s a normal part of life (the transition from summer to fall), or it’s major (the death of a loved one) adjustments need to be made. Sometimes it’s easy and other times it feels like it will knock you to the ground.

Good or bad, change is a source of stress, and stress, while having both good and bad components, can have major implications for someone with a chronic condition.

In 1967, Thomas Holmes and Richard Rahe examined the medical records of over 5,000 subjects as a way to determine whether stressful events (all involving change of one sort or another) might cause illness. Research indicates a correlation between a high score on the Holems and Rahe Stress Scale and illness. 

While an interesting tool to gage how changes in your life could be impacting your health, note that this stress scale is weak in certain areas. They list the number one stressor as being death of a spouse, but don’t list the death of a child at all. There are also cultural differences, let alone individual variations. Still it’s an interesting way to see what might be contributing to your emotional well being. A score of 300 suggests a very high risk of becoming ill.

So what does it take to get to 300? Let’s take the scenario of Jane, not a real person,  who happens to be living with multiple sclerosis (MS). At Christmas (12), she is having difficulty sleeping (16) because she just moved into a condo (28) due to a divorce (73). To make things even more difficult, her mother is sick (39) and she’s started a new job (39). Even though the job pays more, Jane is worried about making payments on her new mortgage (31), since she alone will be responsible for it.  Her former mother-in-law, who she once really liked,  is sending nasty e-mails (29)-“How could you be so mean to my son!” The new job requires longer hours (20) with more responsibilities (29) and consequently Jane’s diet consists of a bagel for breakfast and little else until dinner time, when she pigs out uncontrollably (15). To top it off, Jane got a speeding ticket (11), because she overslept and was rushing to get to work on time. While she doesn’t normally stay out on “school nights,” she had a late dinner with her best friend Paula, whom she normally talked to almost daily. She hadn’t seen her in a month because of all the changes in her life (18). So if my math is correct, Jane has a stress score of 360 and chances are quite high that a flare of her MS will be greeting her in January.

Using Jane as the example, here are some ways to deal with change so it doesn’t make you sick

• The serenity prayer is a good one to keep in mind. “Grant me the serenity to accept what I cannot change, the courage to change what I can, and the wisdom to know the difference.” Jane can’t change that it’s Christmas or that her Mom is sick. However, she can change how she reacts to them. For example, instead of trying to be the most devoted daughter possible, she can work with a sibling to set up a “Lotsa Helping Hands” website so family and friends can help with appointments, rides, meals etc.

• The courage to change is huge for some, while others are totally addicted to it and can’t stand it if things are constant for too long. While there are all sorts of stress scales out there, doing something like the Holems and Rahe Stress Scale can help you recognize there are reasons for why you may be feeling so overwhelmed.

 In Jane’s case, of the more than 10 stress factors in her life, half are things she could change- she has a choice in whether she takes a new job and the host of new responsibilities that goes with it, stays out late when she knows she has to work the next day, doesn’t adhere to a healthy diet, doesn’t stay connected to friends and makes a large purchase-the condo- when she’s unsure of her finances. For the remaining stressors, she may or may not have choices in their happening-such as the divorce itself or an irate mother-in-law, but again she does have choice in how she responds.

• An outsider might view Jane’s life and say, “what chaos.” However, if we asked Jane’s best friend Paula, she might reply, “Oh that’s Jane. The more drama and chaos the happier she is. She wouldn’t know what to do if she wasn’t having a fight with someone or didn’t have some crisis to deal with.” Interestingly, her other close friend Anne has a totally different take. “I haven’t heard from her in months and I know she’s under a lot of unusual stress. That’s just not like her.” Regardless of what makes Jane tick, she’s clearly on over load and heading for a major flare of her MS, with significant consequences on multiple fronts.

• To reduce the impact of change and drama in life, consider the following:
-       Identify the stressors-What can you change? How can you respond differently to those you can’t change?
-       Maintain social relationships. Even if it’s just a few e-mails, stay connected and surround yourself with people who are positive and upbeat. Eliminate or minimize contact with “energy vampires,” those people who drain you of spirit and energy.
-       Laugh
-       Stick to a healthy routine (Eat regularly and be mindful of food choices; Exercise, even if it’s a 10 minute walk three times a day; Sleep between 6-8 hours each night and take naps when you need them.
-       Get professional help if you need it
-       Read Healing the Whole Person: Ways to Increase Well-Being  as there are lots of tips that might be helpful.

Don’t hesitate to remind yourself that change is a normal part of life and that you have dealt with it quite successfully before and you will again. Think back to other situations in your life where you have had to adjust to change. How did you cope?

Keep in mind that your brain is wired to be resilient and try to work with it and not against it. Things like being present in the moment and not obsessed with what was or could be, let’s the brain do its job.

Every Wednesday is “take a break day” at this blog and if you don’t like that day’s take a break, there are plenty archived ones. If you haven’t read the post “Why Take a Break,” do so as it explains how creative work helps us relax and become more mindful. From this vantage point, you will have more insight in ways to deal with the changes and stressors in life and ultimately make choices that are more likely to increase healing, well being and contentment.

In closing, keep in mind that change can be transforming. It may be the course correction that your life needs to put you where you need to be, which may not necessarily be where you think you should be. Ultimately, as one gent I worked with many years ago in AIDS would frequently tell us, “it’s all a process. Trust in it.”

Thursday, September 20, 2012

National Take Back Initiative


The Drug Enforcement Administration (DEA) has scheduled another National Prescription Drug Take-Back Day which will take place on Saturday, September 29, 2012, from 10:00 a.m. to 2:00 p.m. This is a great opportunity for those who missed the previous events, or who have subsequently accumulated unwanted, unused prescription drugs, to safely dispose of those medications. To learn about where to take medications in your community go to http://www.deadiversion.usdoj.gov/drug_disposal/takeback/