With the government shutdown continuing into its second week and most likely will extend for another week or more, what’s the impact, or potential impact, on health care for people with chronic conditions and what can you do?
• Government health
agencies such as the NIH (National Institutes of Health) and the CDC (Centers
for Disease Control and Prevention) have furloughed 52% of their staff.
Websites, such as Pub Med, Medline Plus, are not being updated or are receiving
minimal attention. The CDC has significantly less capacity to deal with
outbreaks such as flu. As CDC Director, Dr. Tom Frieden noted, "I
usually don't lose sleep despite the threats that we face, but I am losing
sleep because we don't know if we'll be able to find and stop things that might
kill people.” The NIH is not
taking new patients or taking action on grant applications. The FDA (Food and
Drug Administration) is unable to support the majority of its food safety,
nutrition and cosmetics activities.
• Social
security and Medicare continue to pay, but there can be delays in processing
new disability applications.
• Many state human
services agencies-including programs such as WIC (Women, Infant, Children),
heating/fuel assistance, housing etc. receive a significant portion of their
funding from the federal government. The longer the shutdown, the more likely
it is that state programs, as well as community based organizations, will no longer be able to remain functional
and significant cuts will be made. Since many with chronic conditions are in
need of these types of services, this will most likely be the area of biggest
impact.
What You Can Do
1. If you count on services like
WIC, heating assistance, housing etc., the first thing is to find out what the
impact could be the longer the shutdown lasts. Is your state going to use their
own money to keep some of the these programs going? If you don’t know who to
call in your state, dial 2 1 1, the
information number. They may already have information that can help you, or
they can refer you to someone who knows more.
2. Once you know
what might happened and when, start preparing. What is it that you absolutely
must have? Make a list and eliminate anything that isn’t essential. Need ways
to cut back? Read Consider Ways to Save Money on Monthlies (Bills).
3. Assess what is
available in your community that is not tied to federal funds. Be sure to
consider:
-
churches
-
civic
organizations (e.g. Rotary, Lions Club)
-
condition
specific organizations (e.g. American Cancer Society)
-
schools
-
support
groups: not only condition specific ones, but places like AA
-
family
and friends
-
thrift
stores and food shelves
-
food
coop
-
charitable
funds of major businesses
4. Reach out to
those listed in item 3. What can you do to help them? If you are scratching
your head and thinking, “but I’m the one that needs help,” consider this- One of the most important things any of us
can do, shutdown or not, is develop “social capital.” If you are not
familiar with that term, it basically means investing in your community so that
you can be of help to them, and they can help you when you need it. The website
“Better Together” offers 150 ways , and counting, to help you develop social
capital. Bottom line is that if you are already involved in helping, you will be in a
better position to benefit should you need it.
5. If you thinking,
“but I’m very limited in what I can do,” you’d be surprised at what you can offer
that will help. Consider things like:
- Organizing a
support group
- Offering to
telephone or e-mail members of an organization
- Stuff envelopes
- Write a
newsletter, or write an article for a newsletter
- Be an advocate for
others, even if it’s just talking to them by phone or e-mail
- Donate items or
services for fundraising events: This can include making a dish for a pot luck
supper; knitting something; giving gently used items that can be resold etc.
- Helping to staff an
office.
- Become a member
and/or board member
- If you have computer skills, offer to run a website, Facebook, blog or a Lotsa Helping Hands website
To learn more ways
to help, call or send an e-mail to a group in your community where you’d like
to volunteer.
6. Since we’re now
heading into Flu season, and the CDC has been heavily impacted by the shutdown, follow the guidelines in Don’t have time for the flu. Take Time to Prevent it.
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