Unlike an acute illness, where there is a
defined treatment period, chronic conditions last indefinitely and so it’s
harder to sustain a team. The purpose of the team is to aid you through their support
and guidance to help you sustain a healing approach to living well with your
chronic condition
What that in mind, consider the following:
Healing
Team Members
• You: Not only are you the captain, but you must
be invested in the process recognizing that you nor any member of your team
alone can do it all.
• Care provider(s): These can include doctors, counselors,
massage therapists, acupuncturists etc.
• Individuals who can support you in mind, body
and spirit. These can be family, friends, co-workers, neighbors, and/or other
community members.
• Advocate:This
person can go with you to medical appointments, stay at the hospital with you
an advocate if you are unable to do so.
• Others with similar conditions: On-line
or in person support groups can be a great way to learn more about your
condition, what’s being tried etc.
Expectations
of your team
• Communication is key. Members need to know
what you are doing, what’s needed etc.
• Sufficient Numbers: Build your team so that there are
enough people to help without over burdening one person. If you are relying
solely on a spouse or partner for support and caregiving understand that this
can become a significant burden that can be reduced by inviting other people to
help.
• Express gratitude: Team members need encouragement and
expressions of your gratitude. While you are most likely paying for care
provider services (e.g. doctor visits, massage therapy etc.) they still
appreciate the acknowledgment that what they’re doing matters. For those doing
chore services, such as driving to medical appointments or shoveling the side
walk after a storm, in addition to a heart felt “thank you,” small things such
as a gas card, a plate of cookies or even a cup of tea make a difference.
• "No:" You and your healing team need to be
comfortable with the word “no,” be it “no” to a test or treatment, “no” to
requests or “no” you aren’t a good fit for my team.
• Be there for them: Help your team members by being there
for them when they are in need.
Additional
Posts
• Creating positive
health outcomes for patients
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